Objective
To compare rates of patient-reported kidney stone disease to Electronic Health Records
(EHR) kidney stone diagnosis using a common dataset to evaluate for socio-demographic
differences, including between those with and without active care.
Methods
From the All of Us research database, we identified 21,687 adult participants with
both patient-reported and EHR data. We compared differences in age, sex, race, education,
employment status and healthcare access between patients with self-reported kidney
stone history without EHR data to those with EHR-based diagnoses.
Results
In this population, the self-reported prevalence of kidney stones was 8.6% overall
(n=1877), including 4.6% (n=1004) who had self-reported diagnoses but no EHR data.
Among those with self-reported kidney stone diagnoses only, the median age was 66.
The EHR-based prevalence of kidney stones was 5.7% (n=1231), median age 67. No differences
were observed in age, sex, education, employment status, rural/urban status, or ability
to afford healthcare between groups with EHR diagnosis or self-reported diagnosis
only. Of patients who had a self-reported history of kidney stones, 24% reported actively
seeing a provider for kidney stones.
Conclusions
Kidney stone prevalence by self-report is higher than EHR-based prevalence in this
national dataset. Using either method alone to estimate kidney stone prevalence may
exclude some patients with the condition, although the demographic profile of both
groups is similar. Approximately one in four patients report actively seeing a provider
for stone disease.
Key Words
To read this article in full you will need to make a payment
Purchase one-time access:
Academic & Personal: 24 hour online accessCorporate R&D Professionals: 24 hour online accessOne-time access price info
- For academic or personal research use, select 'Academic and Personal'
- For corporate R&D use, select 'Corporate R&D Professionals'
Subscribe:
Subscribe to UrologyAlready a print subscriber? Claim online access
Already an online subscriber? Sign in
Register: Create an account
Institutional Access: Sign in to ScienceDirect
References
- Prevalence of kidney stones in the United States.European urology. 2012; 62: 160-165
- Urolithiasis in a rural Wisconsin population from 1992 to 2008: narrowing of the male-to-female ratio.The Journal of urology. 2011; 185: 1731-1736
- Validity of administrative coding in identifying patients with upper urinary tract calculi.The Journal of urology. 2010; 184: 190-192
- Estimating disease prevalence and incidence using administrative data: some assembly required.J Rheumatol. 2013; 40: 1241-1243
- Comparison of approaches for estimating prevalence costs of care for cancer patients: what is the impact of data source?.Med Care. 2009; 47: S64-S69
- Relation between geographic variability in kidney stones prevalence and risk factors for stones.American journal of epidemiology. 1996; 143: 487-495
- Climate-related increase in the prevalence of urolithiasis in the United States.Proceedings of the National Academy of Sciences of the United States of America. 2008; 105: 9841-9846
- Incidence of Kidney Stones in the United States: The Continuous National Health and Nutrition Examination Survey.The Journal of urology. 2021; (101097ju0000000000002331)
- The All of Us Research Program: data quality, utility, and diversity.medRxiv. 2020; (2020.2005.2029.20116905)
- The "All of Us" Research Program.The New England journal of medicine. 2019; 381: 668-676
- A prospective study of dietary calcium and other nutrients and the risk of symptomatic kidney stones.The New England journal of medicine. 1993; 328: 833-838
- Long-Term Adherence to Medications in Secondary Prevention of Urinary Tract Stones.Journal of endourology. 2019; 33: 469-474
- Pushing Stones Uphill: Why Patients Are Lost to Follow-Up After Uncomplicated Ureteroscopy.Journal of endourology. 2017; 31: 135-140
- The stone clinic effect in patients with idiopathic calcium urolithiasis.The Journal of urology. 1983; 130: 1115-1118
- Medical management of kidney stones: AUA guideline.The Journal of urology. 2014; 192: 316-324
- Patients' reasons for missing scheduled clinic appointments and their solutions at a major urban-based academic medical center.J Community Hosp Intern Med Perspect. 2020; 10: 426-430
- Lower Socioeconomic Status is Associated With Adverse Urinary Markers and Surgical Complexity in Kidney Stone Patients.Urology. 2020; 146: 67-71
- Influence of Socioeconomic Factors on Stone Burden at Presentation to Tertiary Referral Center: Data From the Registry for Stones of the Kidney and Ureter.Urology. 2019; 131: 57-63
- Comparing medical history data derived from electronic health records and survey answers in the All of Us Research Program.Journal of the American Medical Informatics Association: JAMIA. 2022;
Article Info
Publication History
Accepted:
November 13,
2022
Received:
September 1,
2022
Publication stage
In Press Journal Pre-ProofFootnotes
Author conflict of interest: the authors have no relevant conflicts of interest to disclose.
Identification
Copyright
© 2022 Elsevier Inc. All rights reserved.
